FORCE - Facing Our Risk of Cancer Empowered  University of South Florida

Enrolled Participants

The ABOUT Network has enrolled 10,500 participants. Here is a snapshot of the ABOUT members who have provided consent and completed the baseline questionnaire to date:

Sex Distribution of Participants  Age Distribution of Participants

Nearly 56% of participants have been diagnosed with breast cancer. About five percent of women have been diagnosed with ovarian cancer, and over seven percent of men have been diagnosed with prostate cancer.  Melanoma and pancreatic cancers are also hereditary cancers that have been associated with genetic mutations, and participants reported diagnoses of other non-hereditary cancers, with the most common being skin cancer.

Prevalence of Cancer Among Participants         

Most of the participants in ABOUT have had genetic testing. Overall, 26% of enrolled participants tested positive for a mutation, with the majority having a BRCA 1 or BRCA 2 mutation.

Types of Gene Mutations  Types of Gene Mutations

 

The majority of participants have been diagnosed with cancer at least once. Ten percent had more than one cancer diagnosis and 34% have never been diagnosed with cancer. 

ABOUT is a Patient-Powered Research Network in PCORnet®,  the National Patient-Centered Clinical Research Network, an initiative funded by the Patient-Centered Outcomes Research Institute (PCORI).

The National Patient-Centered Clinical Research Network
Like Us on Facebook  Find Us on Twitter

© FORCE: Facing Our Risk of Cancer Empowered Inc. info@facingourrisk.org

Website by Rareheron Web Design