FORCE - Facing Our Risk of Cancer Empowered  University of South Florida

Privacy Policy

The ABOUT Network is firmly committed to protecting your data and privacy. We understand that medical information about you, and your health, is personal. You control the amount of information we receive about you and all information you share with us will be kept confidential. If you choose to enroll in ABOUT, you have our pledge to protect your data and privacy.

Your Privacy Is Our Priority

The ABOUT Network adheres to these important privacy assurances:

  • Personal data and health information are stored on a secure computer server
  • Personal data will not be sold, rented, or leased
  • You may choose your level of participation and the amount and type of information to share
  • All information collected about you as part of the ABOUT Network will be kept confidential to the full extent permitted by law
  • The ABOUT Team follows the security guidelines of the U.S. Health Insurance Portability and Accountability Act (HIPAA) of 1996. All collected data is transmitted, stored, and processed in a secure environment.

Your Rights As A Research Network Participant:

  • To know the overall goals of the ABOUT Network
  • To be aware of how your data will contribute to cancer research conducted by the ABOUT Network
  • To be aware of any benefit you may expect from participating in the Network
  • To be given new information that becomes available while you are a Network participant that may affect your decision to participate in the ABOUT Network
  • To know how your privacy will be protected
  • To ask questions and express concerns at any time
  • To withdraw from the ABOUT Network at any time
  • To enroll in the ABOUT Network without feeling pressured or coerced
  • To decline to take part in the ABOUT Network

Contact Us

If you have any questions or concerns regarding the ABOUT Network privacy policy or how your information will be protected, please contact us.

ABOUT is a Patient-Powered Research Network in PCORnet®,  the National Patient-Centered Clinical Research Network, an initiative funded by the Patient-Centered Outcomes Research Institute (PCORI).

The National Patient-Centered Clinical Research Network
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