FORCE - Facing Our Risk of Cancer Empowered  University of South Florida

Ways to Participate

There are three ways that you can contribute to the work of ABOUT:

Why Participate?

ABOUT's goal is to empower informed health decisions and improve outcomes for people affected by hereditary breast, ovarian, and related cancers (HBOC) through patient-powered research.

Every person affected by HBOC has something to offer to ABOUT. Patients hold the key to improving health outcomes for themselves, their families and others.

We offer members the chance to contribute their data to research and volunteer their time to guide the network. Patient involvement in ABOUT's governance keeps us focused on answering the questions that are important to patients.

Who Qualifies?

You can enroll in ABOUT if you have any of the following:

A personal or family history of these cancers:

  • breast
  • ovarian, fallopian tube or primary peritoneal
  • prostate
  • pancreatic
  • melanoma

Tested positive for any of these gene mutations:

  • BRCA 1 or BRCA 2
  • PTEN or Cowden Syndrome
  • TP53 or Li-Fraumeni Syndrome
  • PALB2, ATM, CHEK2, BARD1, RAD51, BRIP1, CDH1, RAD50, NBN or other genes associated with increased cancer risk

Blood relatives who have tested positive for any of the above genes

How to Enroll

It takes 3 easy steps to enroll and contribute your health information to research.

1. View consent form

2. Agree to participate

3. Complete a health questionnaire

You can log back in to your profile at any time to update your records.

Click here to enroll

When You Enroll

Doctor with patient
  • You choose how much health information and medical experiences you will share for research.
  • We share clinical trials and additional research opportunities for which you may qualify.
  • We share research results with you.

Update Your Profile

Online medical record

Are you already a member of ABOUT? Log in to access, update your profile, or upload your genetic test results.

Update your profile

Help Guide ABOUT Research

FORCE Members

FORCE trains members of our community who volunteer their time and experiences to guide ABOUT research.

To apply for ABOUT's Steering Committee or Work Groups, volunteers first complete FORCE's Research Advocate Training (FRAT) program, an online series of webinars on genetics, cancer, and research.

The FRAT program provides people with a foundation of knowledge and tools to effectively represent the hereditary cancer community in the research arena.

Learn more about leadership roles

Apply for FRAT training

ABOUT is a Patient-Powered Research Network in PCORnet®,  the National Patient-Centered Clinical Research Network, an initiative funded by the Patient-Centered Outcomes Research Institute (PCORI).

The National Patient-Centered Clinical Research Network
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