There are three ways that you can contribute to the work of ABOUT:
ABOUT's goal is to empower informed health decisions and improve outcomes for people affected by hereditary breast, ovarian, and related cancers (HBOC) through patient-powered research.
Every person affected by HBOC has something to offer to ABOUT. Patients hold the key to improving health outcomes for themselves, their families and others.
We offer members the chance to contribute their data to research and volunteer their time to guide the network. Patient involvement in ABOUT's governance keeps us focused on answering the questions that are important to patients.
You can enroll in ABOUT if you have any of the following:
A personal or family history of these cancers:
Tested positive for any of these gene mutations:
Blood relatives who have tested positive for any of the above genes
It takes 3 easy steps to enroll and contribute your health information to research.
1. View consent form
2. Agree to participate
3. Complete a health questionnaire
You can log back in to your profile at any time to update your records.
Are you already a member of ABOUT? Log in to access, update your profile, or upload your genetic test results.
FORCE trains members of our community who volunteer their time and experiences to guide ABOUT research.
To apply for ABOUT's Steering Committee or Work Groups, volunteers first complete FORCE's Research Advocate Training (FRAT) program, an online series of webinars on genetics, cancer, and research.
The FRAT program provides people with a foundation of knowledge and tools to effectively represent the hereditary cancer community in the research arena.
ABOUT is a Patient-Powered Research Network in PCORnet®, the National Patient-Centered Clinical Research Network, an initiative funded by the Patient-Centered Outcomes Research Institute (PCORI).
© FORCE: Facing Our Risk of Cancer Empowered Inc. info@facingourrisk.org
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