FORCE - Facing Our Risk of Cancer Empowered  University of South Florida

ABOUT Research Questions:
Does including genetics in survivorship plans increase uptake?

Prioritization Score:
3.00

Feasibility:Low->Medium

Question Source:

ABOUT Public Forum at FORCE Conference

Overview

In 2006 the Institute of Medicine issued a report recommending that all cancer patients receive an individualized survivorship care plan at the completion of treatment with recommendations for monitoring and maintaining their health and wellbeing. These plans vary across health care facilities. Some of the survivorship plans include information about genetic counseling and testing. The question proposed would compare whether patients who receive information about recommendations about genetic services in their survivorship plan have higher rates of genetic testing that those who do not receive this information. 

Prioritization Score

Our Steering Committee and Research Work Group gave this study a prioritization score
of 3.00 out of 4 points, meaning this is a high-priority study.

Feasibility Score

Our Executive Committee and research team considered the feasibility of this study as low->medium. 

Next Steps

Recommend roll back to Assessment Phase.

  • Need more information and input from hospitals on use and content of survivorship plans. Would require way to reach hospitals. 

Details of Prioritization Score

Our Steering Committee prioritizes questions based on four parameters on a scale from 1-4. Here are the average scores:

  • Community impact - 2.93
  • Community need/urgency - 2.79
  • Decision-making impact - 3.07
  • ABOUT Mission - 3.21

Details of Feasibility Score

Our Executive Committee scored feasibility as low->medium based on the following considerations:

  • Fits with ABOUT Mission
  • Because genetics are already a recommended component of survivorship care plans, it is likely that most do contain information about genetics. We need more information on survivorship plan use and content. Even with this information it would be a challenging study to design. 
  • Addresses a gap in reaching cancer survivors who have already completed treatment about genetic counseling and testing
  • No known funding source, but possibilities include PCORI, NIH or AHRQ

References

Cancer Survivorship Care Planning, National Academies of Sciences. August 19, 2015.

This research will be relevant for:

Cancer survivors

Previvors/High risk people

Men

Women

People with a BRCA mutation

People with an ATM, PALB2, PTEN, or other mutation that increases cancer risk

People with Lynch Syndrome

People at high risk for breast cancer

People at high risk for ovarian cancer

People who are newly diagnosed with cancer

Woman submitting question

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ABOUT is a Patient-Powered Research Network in PCORnet®,  the National Patient-Centered Clinical Research Network, an initiative funded by the Patient-Centered Outcomes Research Institute (PCORI).

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