ABOUT Public Forum at FORCE Conference
In 2006 the Institute of Medicine issued a report recommending that all cancer patients receive an individualized survivorship care plan at the completion of treatment with recommendations for monitoring and maintaining their health and wellbeing. These plans vary across health care facilities. Some of the survivorship plans include information about genetic counseling and testing. The question proposed would compare whether patients who receive information about recommendations about genetic services in their survivorship plan have higher rates of genetic testing that those who do not receive this information.
Our Steering Committee and Research Work Group gave this study a prioritization score
of 3.00 out of 4 points, meaning this is a high-priority study.
Our Executive Committee and research team considered the feasibility of this study as low->medium.
Recommend roll back to Assessment Phase.
Our Steering Committee prioritizes questions based on four parameters on a scale from 1-4. Here are the average scores:
Our Executive Committee scored feasibility as low->medium based on the following considerations:
References
Cancer Survivorship Care Planning, National Academies of Sciences. August 19, 2015.
Cancer survivors
Previvors/High risk people
Men
Women
People with a BRCA mutation
People with an ATM, PALB2, PTEN, or other mutation that increases cancer risk
People with Lynch Syndrome
People at high risk for breast cancer
People at high risk for ovarian cancer
People who are newly diagnosed with cancer
ABOUT is a Patient-Powered Research Network in PCORnet®, the National Patient-Centered Clinical Research Network, an initiative funded by the Patient-Centered Outcomes Research Institute (PCORI).
© FORCE: Facing Our Risk of Cancer Empowered Inc. info@facingourrisk.org
Website by Rareheron Web Design